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Tag: Accessibility Awareness

‘Keep Callum at Home’: Osoyoos, B.C. family fundraising for son’s accessibility equipment
Global News

‘Keep Callum at Home’: Osoyoos, B.C. family fundraising for son’s accessibility equipment

Fighting for their 12-year-old son Callum has become a way of life for Osoyoos, B.C., couple Leanne Scott and Dale Fuhr. Callum was diagnosed with a rare genetic disorder called PURA syndrome, which, according to his parents, affects fewer than 500 kids worldwide.Callum also suffers from epilepsy and seizures and deals with scoliosis.“He is wheelchair bound, he cannot stand or walk, he’s diapered so that means he needs 24-hour cognitive care, and he is non-verbal,” said Scott.In order to better care for their son, the family relocated from Regina to Osoyoos, and the pair left their respective careers to become full-time ABM neuromovement practitioners.“The cold weather in Saskatchewan, unfortunately, was very difficult for Callum’s system and the wheelchairs don’t go very far in s...